| Advocacy is standing up for someone's
rights. An advocate takes action to get the help that is needed. The
advocacy and legal services groups listed below can help you in solving problems. |
ARC,
Pennsylvania - The Arc-Pennsylvania works toward the goal of
having people with mental retardation fully participate in civil,
social, educational, health and employment activities in the
communities in which they reside, with the opportunity to grow to
their fullest potential in every way. 717-234-2621, 1-800-692-7258
ARC,
Philadelphia - The Arc of Philadelphia supports
individuals with disabilities and family members through staff who
are parents of offspring with mental retardation. The Arc provides:
1) Support for parents and referrals to early intervention programs
for the newborn or preschool child with a developmental delay or who
is at-risk for delay; 2) Aid to obtain appropriate public school
programs for the school-aged child with special needs; 3) Help to
the graduating young adult and his or her family with the transition
from school to community-based services; 4) Reinforcement to
individuals and families to deal with life’s on-going challenges; 5)
Advocacy for system-wide issues, such as the Waiting List and 6)
Education about mental retardation for the general public.
215-229-4550
American
Disabled for Attendant Programs Today (ADAPT)
- focuses on promoting services in the
community instead of warehousing people with disabilities in
institutions and nursing homes.
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Eastern
Paralyzed Veterans Association - (EPVA)
is dedicated to enhancing the lives of veterans with a spinal cord
injury or disease by assuring quality health care, promoting
research, and advocating for civil rights and independence. EPVA is
a chapter of the congressionally chartered Paralyzed Veterans of
America and has over 2,000 members residing in New York, New Jersey,
Pennsylvania, and Connecticut.
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Epilepsy
Foundation of Southeastern Pennsylvania
The Epilepsy Foundation of Southeastern Pennsylvania is a
non-profit, voluntary health organization that provides education,
support and advocacy for people with epilepsy and their families.
The Foundation also promotes understanding of seizure disorders
through a wide variety of programs presented to business, government
and school communities, professional audiences and the general
public. Contact them for information on adult issues such as
transportation, housing, medical, employment, legal issues and more.
The Foundation also provides family support services and community
education. The Epilepsy Foundation can be contacted at:
Seven Benjamin Franklin Parkway, 6th Floor
Philadelphia, PA 19103-1208
Phone: 800-887-7165 (in PA)
FAX: 215-523-9190
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Inclusion Daily Express - Quick, once-a-day look at disability
rights, self-determination and the movement toward full community
inclusion around the world. Subscription model, $90/year for 10
subscriptions.
Liberty
Resources 1341 N. Delaware Ave., Suite
105, Philadelphia PA 19125– is a non-profit, consumer
driven organization that advocates and promotes Independent Living
for persons with disabilities. It provides peer support, skill
training and information on advocacy,
housing, managed care, news calendar, election guide; jobs, social
and recreational activities and a day care resource data base.
215-636-2000
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Mayor’s
Commission on People with Disabilities
Municipal Services Building
Room 900
1401 JFK Blvd.
Philadelphia, PA 19102
Roger Margulies
215-686-2762
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The
National Coalition on Self-Determination -
is a national coalition of people with disabilities, parents, and
family members who work to promote federal policies that support the
five principles of Self-Determination: self-advocacy, freedom,
authority, responsibility, and support. The Coalition also supports
the Community Imperative, a declaration asserting the fundamental
human right of all people, regardless of the severity of their
disabilities, to community living.
Parents Exchange -
is an information, referral, and advocacy service for
parents and caregivers of children with disabilities and
professionals who work with families. Founded in 1986 by a group of
parents of children with disabilities, our main goal is to help
parents avoid the need to 'recreate the wheel' every time they
encounter an issue.
102 E. Mermaid Lane
Philadelphia, PA 19118
Voice: 215-242-9501
Fax: 215-247-4229
E-mail:
Parents_Exchange@earthlink.com
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Parents
Involved Network (PIN) - is
a statewide network of parents and others interested in children' s
mental health issues. They provide resources such as information,
support and serve as an advocacy voice for children with emotional,
behavioral and/or mental disorders and their families.
311 S. Juniper St., Room 902
Philadelphia, PA 19107
800-688-4226
Central Office: 215-755-2465, 215-751-1800
Northwest: 215-242-2677
E-mail: pin@mhasp.org
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Parent to Parent of Pennsylvania (P2P)
1901 Olde Homestead Lane, Lancaster PA 17605- is a
network created by families for families of children and adults with
special needs. They connect families in similar situations with one
another so that they may share experiences, offer practical
information and/or support. They help match parents, foster parents,
and adoptive parents of children and adults with special needs on a
one-to-one basis according to their needs. All services are free and confidential. Telephone 800-986-4550,
717-540-4722
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Parent's Union - assists
students and parents with school-related problems including special
education and acts as a liaison between parents and school
administration or faculty.
228 W. Chelten Ave.
Philadelphia, PA 19144
E-mail: parentsu@aol.com
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Philadelphia
Citizens for Children and Youth (PCCY) 7
Benjamin Franklin Parkway, 6th Fl., Philadelphia PA 19105-
is
about making the lives of Philadelphia, and the region's children
better, whatever it takes. PCCY fights for children to get their
fair share of City and State budgets, for homeless children, for
abused children, for children who can't afford to get to school
cause they can t afford the bus fare, for children whose parents are
being taken off welfare, for those children who have no safe place
to go and nothing to do in the non-school hours, for children being
threaten by lead paint poisoning or those receiving inadequate
health care. 215-563-5848, info@pccy.org
Pennsylvania Council
on Independent Living - serves as Pennsylvania's Association of
Centers for Independent Living (CILs) working to advance the
Independent Living movement. Have a new fully accessible website
including Policy, Information, and Exchange (PIE), local CILs, live
streaming of disability news, discussion boards, and legislative
news and resources.
101 South Second Street, Suite 4
Harrisburg, PA 17101
717-920-0530 (Voice/TTY) email: pcil@paonline.com
Pennsylvania Developmental Disabilities Council - is made up of
people with disabilities, family members, advocates, and state
department representatives who work to create favorable conditions
for people with developmental disabilities and their families in the
Commonwealth. Created under a federal act and Governor’s Executive
Order, the Council accomplishes is mission through planning for
public policy and by funding proposals from groups and organizations
through a competitive bid process. (See their Web site for yearly
funding opportunities).
Harrisburg
Office: Room 569 Forum Bldg.,
Commonwealth
Avenue, Harrisburg PA 17120
Phone:
717-787-6057
email:
info@paddc.org
Pittsburg
Office: 8500 Brooktree Road, Suite 100
Werford
PA 15090
714-933-1655
Policy
Information Exchange (PIE) - It is the
mission of the PIE to educate and inform Pennsylvanians with
disabilities, their families and advocates, and the general public,
regarding public policy issues and to further the exchange of policy
information between the Pennsylvania Developmental Disabilities
Council and federal, state and local policy makers.
Pennsylvania
Parents and Caregivers Resource Network (PPCRN)
P.O.Box 4336, Harrisburg PA 17111- is a statewide cross-disability, grassroots
network that supports parents' and caregivers' efforts to help their
children and adult family members with developmental disabilities.
PPCRN helps them to form local groups and to network with other
parents in their regions and across the state. The PPCRN promotes
inclusionary practices in all areas of life among parents and
caregivers of children and adults with developmental disabilities.1-800-572-7368,
717-561-0098
Pennsylvania Protection and Advocacy
- is the federally
funded, nonprofit agency responsible for providing protection and
advocacy services to people with disabilities. If you are
experiencing discrimination related to your disability or have
questions regarding the rights and services related to your
disability, please contact PP&A, Inc. at:
1424 North Cameron Street, Harrisburg, PA 17103
717-236-8110 V/ 800-692-7443 V/
717-236-0192 FAX
717-
346-0293 877-375-7139
TTY E-mail: ppa@ppainc.org
Philadelphia Interagency Coordinating Council (PICC) - is
a group of parents and professionals from agencies and programs
serving children with special needs ages birth to five years. The
group provides suggestions on local service development for children
and their families.
Telephone: 215-731-2100.
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Speaking
For Ourselves 502 W.
Germantown Pike, Suite 550, Plymouth Meeting PA 19462- is a
self-advocacy group which began in February, 1982. Speaking For
Ourselves seeks to be an independent community organization
controlled by people with disabilities. Their mission is to help
individuals with disabilities find a voice, teach the public about
the needs, wishes and potential of people with disabilities, speak
out on important issues and support each other through sharing,
leadership development, and helping and encouraging each other.
610-825-4592
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Special
Kids Network 1901
Olde Homestead Lane, Lancaster PA 17605- is a
free, statewide network for families, like yours, with children who
have special needs or disabilities. This number will connect you to
an information and referral specialist in one of six regional areas.
They can help you get connected to a range of resources and supports
services in your community. The Special Kids Network works closely
with Parent to Parent of Pennsylvania which links parents of
children with disabilities to other parents in similar situations. 800-986-4550 for voice or 877-986-5432 TTY.
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TASH
29 W. Susquehanna Avenue, Suite 210,
Baltimore, MD 21204- is an international association of
people with disabilities, their family members, other advocates, and
professionals fighting for a society in which inclusion of all
people in all aspects of society is the norm. 410-828-8274 Fax 410-828-6706
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Transportation Advocacy Project -
Information
about transportation advocacy statewide in PA including: improving
fixed route and paratransit services, accessible taxicabs, making
shared ride affordable, legal and other actions. Find tools and
links for increasing advocacy effectiveness and links to ADA
regulations and rulings.
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Vision
For Equality - is an
agency committed to people with disabilities and family members of
people with disabilities. Vision For Equality can help you find an
advocate or help you solve your health care problems.
718 Arch Street
Sixth Floor North
Philadelphia, PA 19106
(215) 923-3349, (215)-923-8898 (phone)
(215)923-3038 (fax)
Technology for Advocacy
- Resources for using emerging technologies for advocacy work.
NATIONAL ADVOCACY ORGANIZATIONS Back to top of page |